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SDBTT research showcased at national conference

Studying the causes of brain tumours in children: SDBTT-funded research presented at NCRI 2011

Brain tumours were high on agenda at this year’s National Cancer Research Institute (NCRI) conference in Liverpool, which included an entire session of talks on ‘New insights into the biology and management of brain tumours’.

Showcased research included SDBTT-funded work by Professor Paolo Salomoni on the role of ‘autophagy’, a process used by cells to recycle damaged cell components and produce energy.
See the NCRI scientific summary here
Read more about this project here

SDBTT-funded research undertaken by Professor Steve Clifford’s team at Newcastle University showed how medulloblastoma brain tumours in children may be divided into low, medium and high risk groups according to their specific molecular make-up, paving the way for clinical trials for new treatment schedules to reduce debilitating side effects whilst maximising survival.
See the NCRI scientific summary here
Read more about the research project here and the development of systems to test tumour samples during the clinical trials here

Finally, Professors Patricia McKinney and Jill Birch’s findings from their SDBTT-funded project piloting the techniques needed to perform a large scale study looking into the causes of brain tumours in children and teenagers were presented in a scientific poster.
See the poster here
Read more about this project here

£150 million to be spent on advanced cancer treatment

Yesterday, plans were unveiled by Health Secretary, Andrew Lansley to channel £150 million into a new ‘proton beam’ radiotherapy treatment, which will be used to treat patients with cancer including brain tumours.

This type of treatment allows surgeons to precisely target otherwise inoperable tumour types, such as those found in the brain.

Funding this kind of treatment means that 1,500 patients will be able to benefit from this new therapy.

As Britain seriously lags behind other countries when it comes to cancer treatment, this investment is a bid to help make the UK’s treatment world class.

Read more about this story here.

Our supporters help shout about our work

Our supporters have been really quite busy recently ensuring that as many people as possible get to hear about their amazing fundraising and the work SDBTT carries out.

We were thrilled that in mid – November two of our supporters were successful in securing articles in two nationwide publications.

Karen Reep, whose son Ben was diagnosed in 2009 with a brain tumour has recently created a fantastic 2012 calendar with 40 mums posing nude in a series of wonderful photographs. The calendar and the ladies featured in a three page article within the Sunday Mirror Magazine on Sunday 20th November.

Tasha Floyd was diagnosed with a brain tumour at 16 and sadly went blind as a result. In an article with OK! Extra on Sunday 20th November, Tasha explains her story from diagnosis to where she is now, aged 20.

Read the full versions of both articles here.

Brain tumour survival rates have little improvement in 40 years

According to an analysis by Macmillan Cancer Support the overall survival rate for a range of cancers has significantly improved from one year to six years over the last 40 years.

Whilst this is fantastic news for a range of cancer patients, it is disappointing to learn that brain tumour survival rates have shown very little improvement over 40 years.

Brain tumour research receives less than 1% of cancer research spending in the UK, meaning that the answer to increased survival rates is greater investment into a range of high quality research projects.

To read the full article on this story, please go to the link below;

Cancer survival: Macmillan hails major improvement

HeadSmart awareness survey results

HeadSmart logo

Two thirds of adults now aware of the symptoms of brain tumour in children

New research by HeadSmart shows that awareness of brain tumour symptoms in children and young people has improved. Over two thirds (71%) of adults are now aware of the eight main symptoms of a brain tumour in those under eighteen.

However the survey by the campaign, which aims to raise awareness of brain tumour symptoms and speed up diagnosis rates, also revealed that 36% of respondents wouldn’t discuss concerns with their GP.

Brain tumours remain the leading cause of cancer deaths in children and the symptoms, which can be similar to those of other illnesses, are frequently mistaken for less serious conditions. 500 children and young people a year are diagnosed with a brain tumour – nearly ten a week – and a quarter of all child cancers occur in the brain. On average it takes three months for a child to be diagnosed in the UK – three times longer than in the United States.  Delays in diagnosis contribute to a higher death rate and lifelong disability, which child brain tumour survivors are ten times more likely to suffer from than well children.

GP Dr Maureen Baker CBE said:

“Whilst the results show an encouraging growth in parents and carers being aware of the symptoms of a brain tumour, it is worrying that 36% of them would not consult their local GP for more information or to have their child examined.

“We are not sure why parents and carers are hesitant about seeking professional advice but they shouldn’t be. We would urge any person who is worried about a child to look at the HeadSmart website (www.HeadSmart.org.uk), request one of our symptoms cards and seek advice from their doctor.”

The HeadSmart Campaign continues to receive fantastic support from the Royal College of GPs in helping to raise awareness of the symptoms of brain tumours in children and young people.

ENDS

For media inquiries, please contact Zoe Thorogood, Esme Knight or Tim Connolly on 020 7618 9185 or at headsmart@luther.co.uk

Notes to Editors

  1. The Royal College of Paediatrics and Child Health, the Samantha Dickson Brain Tumour Trust and the Children’s Brain Tumour Research Centre at the University of Nottingham joined forces to create a major campaign – HeadSmart – raising awareness of the symptoms of brain tumours in children and young people. The campaign was launched on 8 June 2011 and targets clinicians, parents, carers and young people, educating them how to recognise and diagnose the symptoms of brain tumours. Brain tumours are the leading cause of cancer-related death in children and can increase the chances of long-term disability, which early diagnosis can help prevent.
  2. The HeadSmart project is supported by the Royal College of GPs.
  3. An evidence based best practice guideline The Diagnosis of Brain Tumours in Children, endorsed by Royal College of Paediatrics and Child Health (RCPCH), for the referral of children with suspected brain tumours has been developed and is available from www.HeadSmart.org.uk
  4. The process used by the Children’s Brain Tumour Research Centre at the University of Nottingham to produce the ‘Diagnosis of Brain Tumours in Children’ guideline has been formally approved under the NHS Evidence Accreditation Scheme, assuring staff that they are accessing some of the best information available online to make informed decisions about patient care.
    1. The HeadSmart project is funded by The Health Foundation and Samantha Dickson Brain Tumour Trust
    2. The most typical symptoms of brain tumour in children and young people include:
  • Persistent or recurring vomiting
  • Persistent or recurring headaches
  • Deteriorating vision
  • Blurred or double vision
  • Poor balance and co-ordination
  • Abnormal eye movements
  • Fits or seizures
  • Behavioural changes, especially tiredness

In older children or teenagers, symptoms can also include slow or late start of puberty.

  1. For further enquiries about the campaign, or for media enquiries contact the HeadSmart communications team on headsmart@luther.co.uk or 0207 618 9185