Parent and carer guide: Brain and Spinal Tumours in Children and Young People
Samantha Dickson Brain Tumour Trust sponsored the creation of this comprehensive guide to brain and spinal tumours in 2008. The guide covers all aspects of the journey, from initial diagnosis to long term follow-up. Please click on the image below to see the booklet as a pdf file. You can also order your own hard copy of the booklet by contacting our support team on 01252 749990 or by email at support@sdbtt.co.uk.
Factsheets on individual tumour types accompany the guide which can be found here.
Returning to school
This excellent guide is directed at teachers but may be helpful for parents as well.
You can download it from their website here, or by clicking on the image above, and it is also available free of charge from:
Cerebra
Principality Buildings
Guildhall Square
Carmarthen
SA31 1PR
Tel: 01267 244 200
HeadSmart – be brain tumour aware symptom cards
The HeadSmart – be brain tumour aware campaign promotes earlier diagnosis of brain tumours in children and young people. Samantha Dickson Brain Tumour Trust has worked in collaboration with The Royal College of Paediatrics and Child Heath and the Children’s Brain Tumour Research Centre at the University of Nottingham to produce a set of practical resources to help people become ‘brain tumour aware’.
You can download electronic copies of the HeadSmart leaflet and symptom card from the HeadSmart website by clicking on the images above. If you would like hard copies, please contact us on 01252 749990 or email info@headsmart.org.uk
Young people’s guide to brain injury
This book has been written in a clear and colourful way that will appeal to young people across a wide range of ages. It can be used as a standalone resource for families or to support individual or groups in clinical settings.
The book gives factual info about the brain that is easy to understand. It explains why people change after a brain injury or tumour and why it is so confusing and upsetting living with a parent who has had any kind of brain injury.
It encourages young people to think about how they can look after themselves physically and mentally and to avoid developing negative coping like withdrawal, self injury or substance misuse. The final section leaves space for the young person to write their own story and to use it in order to seek help.