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News

Here you'll find all our latest news.  Please subscribe to our monthly e-newsletter to keep up to date.  If you have a news story for us or need spokespeople for your story, please contact our media team.

Become a HeadSmart Community Champion

Whilst brain tumours account for a quarter of childhood cancers, many parents, young people and health professionals are not confident in their ability to recognise the symptoms of a brain tumour, causing longer diagnosis times. This needs to change, and the HeadSmart campaign is starting to make a difference.

We are now looking to expand our activities with the help of a team of HeadSmart Community Champions. If you are just as passionate as we are about getting the HeadSmart message out to the wider public, then you could be just the person we are looking for to make a real and lasting difference to the lives of children and young people.

Read more about becoming a HeadSmart Community Champion

SDBTT welcomes new grant panel experts

We are delighted to welcome three new experts to our Grant Review and Monitoring committee. The committee assesses and makes recommendations on which projects to fund, and monitors progress on current projects.  Professor Martin van den Bent and Professor Martin Taphoorn join us from Erasmus University and the Hague Medical Centre, both in the Netherlands, and Professor Chris Twelves from the University of Leeds. All three new GRAM members are leaders in their fields with impressive biographies and extensive relevant experience – read more about them below. This follows the retirement from GRAM of Professor Jillian Birch from the University of Leeds and forthcoming end of term of office of Dr Stephen Falk of Bristol Oncology centre later this year. A big thank you to Professor Birch, Dr Falk and all our GRAM members for their work – we could not do it without you!

Professor Martin Taphoorn

Professor Martin Taphoorn has combined clinical work in The Hague with a professorship in neuro-oncology at the VU University Medical Center Amsterdam since 2007.

He is an active member of both the EORTC Brain Tumour Group and Quality of Life Group.

His research concentrates on quality of life and palliative care for brain tumour patients.

Professor Chris Twelves

Professor Chris Twelves is Professor of Clinical Cancer Pharmacology and Oncology, & Head, Clinical Cancer Research Groups, Leeds Institute of Molecular Medicine and St James’s Institute of Oncology

He Chaired the New Drug Development Group of the EORTC and has sat on the Feasibility Studies Committee and New Agents Committee of Cancer Research UK.

Professor Twelves is a medical oncologist with a particular interest in new drug development and clinical pharmacology; his clinical practice has been in colorectal and breast cancer.

Find out more about Professor Twelves on the University of Leeds and Institute of Cancer Therapeutics websites.

Professor Martin van den Bent

Professor Martin van den Bent works as a Consultant Neurologist and Professor of Neuro-oncology at the Daniel den Hoed Cancer Center and Erasmus University Hospital, Rotterdam, The Netherlands.

He is past chair of the EORTC Brain Tumour Group and has been a member of the SDBTT Scientific and Medical Advisory Board for several years.

His research interests include brain tumour clinical trials, prognostic markers in neurooncology and the genetic changes that occur in brain tumours.

Some Good News!

We are feeling incredibly proud of our extraordinary fundraiser Hannah Jones right now.

Hannah Jones, who helps run the SDBTT Hannah Jones Fund, has not only raised £160,000 but has just been awarded the Rotarian Young Citizen Award.

In a recent BBC video, Hannah was filmed talking about been diagnosed with a brain tumour and the fundraising that she organises. This very wonderful video was picked up by Russell Howard’s Good News. Take a look yourself, Hannah appears at 26.30 minutes in.

Russell Howard’s Good News

Proton beam therapy centres announced for UK

Samantha Dickson Brain Tumour Trust welcomes the Department of Health’s announcement of two proton beam therapy centres in England, meaning patients will no longer need to go abroad for treatment.

Around 1,500 cancer patients a year will benefit from a cutting edge cancer treatment – Proton Beam Therapy – that will be available in London and Manchester, Health Secretary Andrew Lansley announced today.

Up to £250 million will be invested by the NHS in building Proton Beam Therapy facilities at The Christie NHS Foundation Trust hospital in Manchester and University College London Hospitals NHS Foundation Trust. The Department of Health have set aside public capital for this scheme.

Given the complex nature of the treatment and facilities, Proton Beam Therapy won’t be fully available in England until 2017. Until then, the NHS will continue to fund patients in need of Proton Beam Therapy to go abroad – either to Switzerland or the USA. By 2014/15 the NHS will be spending £30 million per year sending up to 400 patients overseas.

Read the full story here: http://mediacentre.dh.gov.uk/2012/04/05/centres-selected-to-host-cutting-edge-cancer-services/

SDBTT joins forces with the Christopher Clarke Cancer Research Fund

The Christopher Clarke Cancer Research Fund (CCCRF) is joining forces with Samantha Dickson Brain Tumour Trust (SDBTT) in a bid to increase the research into brain tumours and reduce mortality rates. The merger was officially announced on 31st March at Hope Hospital in Manchester.

CCCRF was set up by Christopher’s mother, Karen Clarke, after her son tragically succumbed to a brain tumour in 2006, with the aim of reducing the number of deaths by brain cancers by funding research. In the six years since Christopher’s passing, CCCRF has raised a staggering £320,000.

Karen told us that “Towards the end of his life I made a pledge to Christopher to try to help research into this truly frightening disease, which took his life cruelly at such an early age. He was very keen to raise money to enable research into the causes and treatment of a disease which, though uncommon, strikes down young people like him more than any other cancer.” Karen made the choice to merge with SDBTT following thorough research into brain tumour charities, saying “We have chosen SDBTT because they are the leading brain tumour charity.  We know therefore that the funds we have raised will be invested in the very best, highest quality research in the UK.  We are looking forward to merging with them to work towards a way to stamp out this cruel and devastating disease.”

Sarah Lindell, CEO of SDBTT, who attended the event along with other senior staff of the charity and trustees of CCCRF, is pleased that the two charities are merging to create a strong market leader in brain tumour research. “We are honoured to be working with Karen and the Christopher Clarke Cancer Research Fund.  Karen, her family and friends have raised an incredible amount of money – over £320,000 to date, inspired by her son Christopher whom they sadly lost.  Brain tumours are the biggest cancer killer of children, more than leukaemia, yet woefully underfunded in comparison.  Together we can change this.”

Neil Dickson, Founder and Chair of SDBTT welcomes the merger. “We are only too aware of how losing a child to a brain tumour can turn your life upside down and the need to then do something so that other families don’t have to go through this.  So we know that together we can raise more to invest into research to find a cure for this devastating disease and save children’s lives in the future.We are pleased that CCCRF have chosen to put their trust in us, working with us to invest more into brain tumour research.”