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News

Here you'll find all our latest news.  Please subscribe to our monthly e-newsletter to keep up to date.  If you have a news story for us or need spokespeople for your story, please contact our media team.

Hannah Jones shares her story with the Daily Mail

Hannah Jones, who was diagnosed  with a brain tumour aged 15, has shared her story with the Daily Mail.

Hannah, who runs the SDBTT Hannah Jones Fund with her family has raised a staggering £160,000.  She has been spurred on by the severe lack of funding into brain tumours and has made a significant difference to the research SDBTT has been able to fund.

Hannah, who has undergone three major operations on her brain has suprised everyone, including her doctors, with the recovery she has made. She is now studying at Chester university, whilst still finding time to carrying on fundraising and help raise vital awareness for brain tumours and the need for increased research and support.

Read the full article here.

Government issues new guidance on brain tumour scans

Government responds to pressure: New guidance on brain tumour scans a huge step forward

Samantha Dickson Brain Tumour Trust (SDBTT) welcomes new Guidance governing how GPs refer suspected brain tumour patients for MRI scans which will improve outcomes and save lives which responds directly to calls from Samantha Dickson Brain Tumour Trust and other brain tumour charities for health authorities and Government to take action to speed up the diagnosis of the condition.

If busy medical professionals are able to act on the Department of Health’s (DH) new best practice guidance ‘Direct Access to Diagnostic Tests for Cancer’ (issued in April) it will go a long way to achieving one of the key aims of the ‘Manifesto for Everyone Affected by a Brain tumour’ – developed by Samantha Dickson Brain Tumour Trust and other brain tumour charities – earlier and better diagnosis of brain tumours.

In order to facilitate faster diagnosis of brain tumours, the new guidance encourages GPs to initiate a direct referral for MRI brain scan at the same time as initiating an urgent referral to a specialist and sets out the symptoms which would justify such a referral.

Sarah Lindsell, CEO of SDBTT, said “58% of brain tumours are presently diagnosed because of an emergency presentation with only 1% of patients diagnosed following an urgent GP referral for suspected cancer – this guidance is a major breakthrough to change these dreadful statistics in the future.   It has been a long-standing aim of Samantha Dickson Brain Tumour Trust to reduce diagnosis times for both adults and children, which is evidenced through our investment in our HeadSmart: be brain tumour aware campaign.  We hear devastating stories of late and missed diagnosis on a daily basis and welcome any action to improve diagnosis times for patients in the future as it will reduce long term disabilities and ultimately save lives.“

The guidance sets out three sets of symptoms, which since 2005 have justified urgent referral for a maximum 2 week wait, but which would now also justify direct referral to scanning. These are detailed in the notes but include combinations symptoms such as headaches, vomiting, posture change and blackouts. It does point out that clinical judgement is still required because while 70% of patients with a brain tumour will experience a headache during their illness the chance of a headache being associated with a brain tumour is around 0.09%.

At the same time it confirms that over the next four years an unspecified share of the £450m dedicated to the Improving Outcomes: A Strategy for Cancer will be dedicated to raising the signs and symptoms of cancer and fund increased GP access to diagnostic tests such as a MRI.

Sarah Lindsell added: “The challenge is not to ensure ALL GPs are aware of this new guidance, including the signs and symptoms of brain tumours, and implement it effectively.  Brain tumours kill more children and adults under 40 than any other cancer and we will promote this guidance to all GPs and people affected by a brain tumour to save lives.”

The Department of Health’s announcement is available at: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_133510

Alex Bolt Research Fellowship

Alex Bolt presentation

The SDBTT Alex Bolt Fund, one of our dedicated support groups, has recently presented a cheque for £85,000 to Samantha Dickson Brain Cancer Unit at University College London’s (UCL) Cancer Institute. The Alex Bolt Research Fellowship, currently held by Dr Steve Pollard, will conduct research into the most common malignant brain tumour and its treatment and this significant investment by the group, will make a real difference to the research being carried out.

Dr Pollard is at the forefront of research into cancer stem cells in brain tumours at UCL, noting that a great highlight for him has been the progress in looking for new drugs that could be used to treat glioblastoma, the most common and most aggressive malignant primary brain tumor.  The very latest cell imaging technologies and analysis tools have been used to identify drugs that can block the proliferation of glioblastoma cells without affecting normal cells.  The research has shown that certain drugs which block related proteins called kinases can stop GSCs multiplying in the lab. Such new ‘smart drugs’ may improve treatment for people with glioma brain tumours.

“This is really exciting progress in research into brain tumours.” says Sarah Lindsell, Chief Executive at SDBTT. “We are advancing daily in our understanding of how brain tumours work and are therefore better able to fight them with appropriate treatment.”

Teenage Cancer Awareness Week

This week is the first teenage cancer awareness week, and the Teenage Cancer Trust have published new statistics showing just how long it takes for teenagers with cancer to be diagnosed. They show that it is still taking too long for young people to be diagnosed, but we hope that the HeadSmart campaign can make a difference for those with brain tumours. Young people are a major audience for the campaign; the more awareness the better.

As Julia Trusler, Head of Research and Policy at SDBTT, explains, “It is shocking to read the results of a survey showing that a quarter of young people with cancer visit the GPs four or more times before being referred to a specialist. This adds to the evidence suggesting that young people with brain tumours and other cancers could be diagnosed earlier, and highlights the importance of campaigns like HeadSmart. This is a campaign to promote awareness of brain tumour symptoms in children and young adults with the aim of reducing the time it takes for them to be diagnosed.”

Find out more about the Teenage Cancer Trust’s survey

London Marathon 2012

Team SDBTT were out in force on Sunday 22nd April, coming together to cheer on our dedicated runners who, after months of training, hours spent cajoling generous friends for sponsorship and nights spent nursing sore feet, were finally ready to take on the London Marathon!

Team SDBTT had 78 runners, thanks to the crafty work of Debbie Daley who cleverly persuaded the Nestle Pure Life running team to fundraise for SDBTT, adding a further 50 runners to our enthusiastic team.

Those who would rather stand at the sidelines with a cup of coffee, headed to the SDBTT cheering spot where a rowdy bunch of staff and supporters looked out for our wonderful runners and made sure we cheered profusely for them all.

After our runners completed this amazing challenge, food and drinks were served at a post event which gave the runners a chance to catch up and compare those all important finishing times!

The day was truly inspiring and the SDBTT team all felt incredibly proud (and a little smug) to have such amazing supporters, both the runners and everyone who came along to cheer. As Lisa Heath, who ran the marathon for us sums up, ‘A day to remember. I am so pleased I saved myself for the London Marathon and that I ran for Samantha Dickson Brain Tumour Trust. The crowds were absolutely fantastic.’

If this has prompted you to don your running shoes for SDBTT,  whether it be a 10k run, half marathon or the London Marathon 2013, give Nina a shout at nking@sdbtt.co.uk or call 01252 749997.

Check out the finishing times of all our runners.